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What is the project? CNY-CAN is a project funded nationally through the Patient-Centered Outcomes Research Institute (PCORI), to bring together older adults, family members who care for older adults, and citizens with health providers and researchers to develop research projects that make it easier for older adults to age well in their own homes, even as age-related health issues arise. We know that health care is most effective when patients and family members talk with their health providers about treatment options and take part in deciding which treatments are best for them. In the same way, we believe that research intended to improve health care will be most effective if patients and caregivers are part of research decisions from the beginning.
Who is involved? F.O.C.U.S. Greater Syracuse is leading the project with the Southwest Community Center, SUNY Upstate Medical University’s Division of Geriatrics and HealtheConnections. The project is funded by Patient-Centered Outcomes Research Insutitute (PCORI) and administered through Health Resources in Action (HRiA).
How are citizens being involved? In 2015, CNY-CAN went directly to the citizens, caregivers, providers, researchers, and other stakeholders to find out what research ideas are important to them.
Six research ideas were identified that compare two or more approaches to:
(1) empowering older adults to make their own health decisions;
(2) increasing early detection of health & social support needs;
(3) improving communication between providers & older adults & their caregivers;
(4) improving frail elder access to primary care in the home;
(5) reducing stress among patients & informal caregivers; and
(6) improving care provided by formal caregivers.
In 2016 and 2017, CNY-CAN continues to engage stakeholders in identifying the best research question to develop as a competitive research proposal.
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F.O.C.U.S. Greater Syracuse is a non-profit, citizen-driven organization serving Central New York that taps citizen creativity and citizen engagement to impact change in Central New York by enabling citizens, organizations, and government to work together to enhance the quality of our lives and our economic future. F.O.C.U.S. stands for Forging our Forging Our Community’s United Strength.
HealtheConnections is a non-profit corporation that supports the meaningful use of health information technology and technology adoption and the use of community health data and best practices to enable Central New York stakeholders to transform and improve patient care, improve the health of populations and lower health care costs.
The Southwest Community Center (SWCC) is a non-profit organization serving the education social, cultural, health, employment, legal, and recreational needs of Syracuse’s low and moderate-income residents. SWCC provides its network of services to residents of predominantly African American, low-income neighborhoods of southwest inner city Syracuse.
Upstate Medical University is the only academic medical center in Central New York and the region’s largest employer. Affiliated with the State University of New York, its mission is to improve the health of the community through education, biomedical research and health care. Upstate’s Division of Geriatrics is the lead division on the PCORI project.